mimesere: (Default)
[personal profile] mimesere
My sister has been discharged from the hospital and is at home now. She is all set up in our downstairs living room with the hospital bed they sent over and the oxygen machine and just piles and piles of medication and needles and our kitchen is filled with um, bags of some kind of IV infusion. So far, I have learned to take my sister on and off the IV, change the infusion, take blood sugar tests, and administer shots of I-don't-know-what. all of this is fine, really, truly it is. It's not particularly difficult and I'm relatively good with it, but it's stressful as all hell and it gets worse when, as happened this particular weekend, I have three people -- including my sister -- screaming at me that I am doing it wrong and don't I understand that if air gets inside the tube she's gonna die and I just want her to die and get away, don't touch, they don't trust me to do it correctly, why didn't I just wait for the fucking nurse to come. To which I responded that it was *fine*, they could do the shots and the bag prep and the IV hookups and everything because *clearly* I could not be trusted to follow simple instructions and oh, also, THEY TOLD ME to change the bag and that's the only reason I did it. Then the nurse did come (too late for the disconnect) and said that my other sister had done a good job disconnecting the bag. No one apologized or said anything.

I am taking a brief leave from work, I think, with the possibility of going to part-time until whatever happens, um, happens. There's no one else to do all the things that need doing and my mom can't and my brother who finally came back from Iran and my sister who is going through the nasty divorce and my other sister who has huge problems of her own can't be here all or most of the time and I'm just...stuck.

(no subject)

Date: 2006-10-02 03:34 pm (UTC)
From: [identity profile] demon-mistress.livejournal.com
are you sure she doesn't qualify for some sort of non-hospital visiting nurse service? it may be something to look into, rather than having to deal with the kind of abuse you described here.

(no subject)

Date: 2006-10-02 03:37 pm (UTC)
From: [identity profile] mimesere.livejournal.com
The visiting nurse comes once or twice a week to draw labs and do the big stuff. The littler stuff, the stuff I do, is twice a day and the insurance won't authorize more visits for something the family can be trained to do.

(no subject)

Date: 2006-10-02 04:02 pm (UTC)
From: [identity profile] demon-mistress.livejournal.com
:( Sorry to hear that. Then please, please, please do whatever it is that you have to do to maintain your sanity through this: find a care-giver support group for yourself, go outside and scream, rant here. It's hard enough to find yourself doing this for someone who appreciates it, you need to take extra special care of you now!

(no subject)

Date: 2006-10-02 03:35 pm (UTC)
From: [identity profile] laurashapiro.livejournal.com
It sounds just awful. {{{S}}}

It must be infuriating to be so willing and able to help in a crisis and have everyone be so dismissive of you. ):

Is there anything I can do for you?

(no subject)

Date: 2006-10-02 03:40 pm (UTC)
From: [identity profile] mimesere.livejournal.com
It is not my idea of good times, no. and I'm just tired and stressed and cranky all the time now, which doesn't help with any of it, because so is everyone else, and we end up either shouting at each other or just swallowing it down and trucking on.

And hugs are always good :) *cuddle*

(no subject)

Date: 2006-10-02 03:40 pm (UTC)
From: [identity profile] elke-tanzer.livejournal.com
*gentle hugs*

*virtual chocolates*

*more hugs*

(no subject)

Date: 2006-10-03 06:48 am (UTC)
From: [identity profile] mimesere.livejournal.com
*hugs back lots*

(no subject)

Date: 2006-10-02 03:45 pm (UTC)
From: [identity profile] copernica3.livejournal.com
Oh, ouch. I'm thinking about you and your family, if that helps. *hugs*

(no subject)

Date: 2006-10-03 06:49 am (UTC)
From: [identity profile] mimesere.livejournal.com
Thank you. *mwah*

(no subject)

Date: 2006-10-02 03:53 pm (UTC)
hesychasm: (rogue (pensive))
From: [personal profile] hesychasm
*more hugs for you* I may not say it a lot, but I'm thinking of you and your family.

(no subject)

Date: 2006-10-03 06:50 am (UTC)
From: [identity profile] mimesere.livejournal.com
*cuddle* Thank you.

(no subject)

Date: 2006-10-02 03:53 pm (UTC)
ext_15536: Fuschias by Geek Mama (Default)
From: [identity profile] geekmama.livejournal.com
I'm so sorry. It's such a difficult time for everyone, and it doesn't help matters to be less than civil with each other.

*hugs you*

(no subject)

Date: 2006-10-03 06:52 am (UTC)
From: [identity profile] mimesere.livejournal.com
It's just very high stress and my family's reaction to stress in general is to go straight for the shouting and assigning of blame. We put the fun in dysfunctional.

(no subject)

Date: 2006-10-02 03:55 pm (UTC)
ext_7904: (dw-boohoo)
From: [identity profile] porridgebird.livejournal.com
Jesus, how awful for you :( *hugs*

(no subject)

Date: 2006-10-03 06:52 am (UTC)
From: [identity profile] mimesere.livejournal.com
*snuggles*

(no subject)

Date: 2006-10-02 03:58 pm (UTC)
From: [identity profile] speshope.livejournal.com
As far as I can tell from my observing about twelve billion IV related things, a little air in the line is fine. So if no one's told you that, there's that. Though, I'm not a nurse or anything, so take it with a grain of salt until you could confirm with someone who really knows.

These situations are so difficult and I totally feel for you. *hugs*

(no subject)

Date: 2006-10-06 04:49 pm (UTC)
From: [identity profile] mimesere.livejournal.com
One of the nurses told us that a little air was okay, but my sister will freak out if she thinks there's even the tiniest little bubble anywhere in the line. It makes bag-changing time an exciting new adventure every day.

And also, *hugs*

(no subject)

Date: 2006-10-06 07:09 pm (UTC)
From: [identity profile] speshope.livejournal.com
Yeaaah, it still makes me a little nervous when I see air in a tube, even though I know that it's okay rationally. I saw a play in High School where a guy was killed by injecting air into a vein and it stuck with me, I guess.

(no subject)

Date: 2006-10-02 04:28 pm (UTC)
From: [identity profile] graygirl.livejournal.com
Ah, take good care of yourself over there too.

(no subject)

Date: 2006-10-06 04:51 pm (UTC)
From: [identity profile] mimesere.livejournal.com
I am trying. Things have gotten a little better this week.

(no subject)

Date: 2006-10-02 04:30 pm (UTC)
cyprinella: broken neon sign that reads "lies & fish" (Default)
From: [personal profile] cyprinella
I so wish I could snap my fingers and make everything okay for you. You always seem to get the crap end of the stick. *hugs*

(no subject)

Date: 2006-10-06 05:00 pm (UTC)
From: [identity profile] mimesere.livejournal.com
*cuddles* You are awesome with the niceness. And things have to get better eventually, so I am hopeful.

(no subject)

Date: 2006-10-02 05:31 pm (UTC)
From: [identity profile] coniraya.livejournal.com
*hugs*
I'm sorry I haven't said it before but I have been following what's happening with your family I just don't know what to say in situations like these most times.
*hugs*
Take care of yourself through this. Your problems are not any less important than anyone else's

(no subject)

Date: 2006-10-06 05:03 pm (UTC)
From: [identity profile] mimesere.livejournal.com
It's okay, I never know what to say in these situations either. Thank you for, er, reading/listening to me venting :)

*hugs*

(no subject)

Date: 2006-10-02 05:36 pm (UTC)
anonymous_sibyl: Red plums in a blue bowl on which it says "this is just to say." (BtVS: Buffy Class Protector)
From: [personal profile] anonymous_sibyl
Hey, there.
*hugs if you want them*

(no subject)

Date: 2006-10-06 05:16 pm (UTC)
From: [identity profile] mimesere.livejournal.com
Hugs are always wanted.

*cuddle*

(no subject)

Date: 2006-10-02 05:46 pm (UTC)
From: [identity profile] buddleia.livejournal.com
Goddammit.
*steals you*
*wraps you up on the sofa and makes you tea*

(no subject)

Date: 2006-10-07 02:21 am (UTC)
From: [identity profile] mimesere.livejournal.com
*snuggles* I am very fond of tea!

(no subject)

Date: 2006-10-02 07:23 pm (UTC)
minim_calibre: (Default)
From: [personal profile] minim_calibre
Oh, darling, I'm so sorry. So sorry you're stuck, that insurance won't pay for what they can train family to do (which just makes me mad--like you don't have enough going on with all this, and they won't spring for professional help?), that they're treating you like this, that I can't do anything but offer virtual hugs and shoulders.

(no subject)

Date: 2006-10-07 02:23 am (UTC)
From: [identity profile] mimesere.livejournal.com
I am very confused by the whole no-nurse-visit thing, because um, what if we were all functionally retarded or something? It's just...frustrating and icky.

And virtual hugs are awesome.

*hugs*

(no subject)

Date: 2006-10-02 10:47 pm (UTC)
From: [identity profile] data-warrior.livejournal.com
Take care of you. The rest will come.

(no subject)

Date: 2006-10-07 02:23 am (UTC)
From: [identity profile] mimesere.livejournal.com
*hugs* Thank you.

(no subject)

Date: 2006-10-02 10:52 pm (UTC)
ext_76: Picture of Britney Spears in leather pants, on top of a large ball (Just because it's inevitable)
From: [identity profile] norabombay.livejournal.com
1. Work is required to give you up to 12 weeks off of unpaid leave under the family medical leave act. Call the HR department, check your options. If they will not pay the benefits while you are not working, you will need to pay cobra. But: The stress level will be much less

2. Keep work as a part time, if that works, because it's a good reason to get out of the house.

3. I'm sorry. Breathe deep, and try to hold on. It sucks that they don't appreciate you. It sucks that there is fighting. It just does.

(no subject)

Date: 2006-10-07 02:25 am (UTC)
From: [identity profile] mimesere.livejournal.com
Work gave me a brief absence and I'm going back on Monday part time, so that part worked out well enough.

And things have to get better in some way or another.

(no subject)

Date: 2006-10-02 10:54 pm (UTC)
From: [identity profile] irradiatedsoup.livejournal.com
*squishes you real tight*

(no subject)

Date: 2006-10-04 04:14 pm (UTC)
From: [identity profile] mimesere.livejournal.com
*snuggles*

(no subject)

Date: 2006-10-02 11:48 pm (UTC)
From: [identity profile] rawumber.livejournal.com
Oh honey.

She doesn't qualify for home hospice? Or are they all NO NO NO still? In any case, I'm so sorry things are crazy. And you know, Sunday. Seriously. I get you can't leave the house, but we could watch things and you wouldn't be alone with your family. Or running errands y'all need run. All that stuff.

The tubes and wires don't freak me out at all.

(no subject)

Date: 2006-10-07 02:26 am (UTC)
From: [identity profile] mimesere.livejournal.com
Erm. What is home hospice? And I am betting no, she does not qualify.

And I would happily hang with you Sunday, but I think I am compiling paperwork for my soon-to-be divorced sister.

(no subject)

Date: 2006-10-07 02:38 am (UTC)
From: [identity profile] rawumber.livejournal.com
It's similiar to what it sounds like you have now, but with MORE help, more services. It's a home based hospice program, devloped to make it more humane for people to die at home.

And as a reaction to people who don't want to send their family members etc SOMEWHERE.

And hey, try to remember to have some time to take care of yourself too, not all the rest of your family.

HUGS

(no subject)

Date: 2006-10-03 01:50 am (UTC)
From: [identity profile] arallara.livejournal.com
Wow. That is just *a lot* to deal with. I'm so sorry for all the ways this situation is less than ideal, and I hope it all goes as well as it can from here on out. I wish I had more to offer, but just know I'll be thinking about you and sending good thoughts your way. If you can, give yourself lots of treats and take care of yourself, too. {{hugs}}

(no subject)

Date: 2006-10-07 02:29 am (UTC)
From: [identity profile] mimesere.livejournal.com
It is certainly a learning experience, though I suspect I could have gone my whole life without ever needing to know it.

Who knows, maybe it will bring us all together.

I have no idea how you're getting through this

Date: 2006-10-03 02:53 am (UTC)
From: [identity profile] kormantic.livejournal.com
but I know that you will.

I'm so sorry that everything is pitch fucking black and awful for you right now; your poor sister, your poor family, and aw, baby, you.

If I lived in town, I'd at least be able to bring you a pizza or take you for a drive somewhere, but I'm sure you've got people nearby who would be glad to give you a shoulder to cry on-- or punch, if that's what you need.

Take care of yourself as best you can.
From: [identity profile] mimesere.livejournal.com
*snuggle* Thank you, darling.

(no subject)

Date: 2006-10-03 05:56 pm (UTC)
From: [identity profile] ravenslost.livejournal.com
Oh honey, that sucks so hard! I wish I could hep in some way. How about this: If you need to vent at some point I'll be happy to provide my phone number and you'd be welcome to call, anytime. Sometimes just hearing a friendly voice can help. Let me know where I should send my number. ::big hugs::

(no subject)

Date: 2006-10-07 02:36 am (UTC)
From: [identity profile] mimesere.livejournal.com
*cuddles lots* If you would still like to, you can send your number to mimesere at earthlink dot net.

(no subject)

Date: 2006-10-04 02:37 am (UTC)
ext_1888: Crichton looking thoughtful and a little awed. (Default)
From: [identity profile] wemblee.livejournal.com
:(

{{{{{{{{{{{{{ }}}}}}}}}}}}}}}}

(no subject)

Date: 2006-10-04 04:14 pm (UTC)
From: [identity profile] mimesere.livejournal.com
*cuddle*

(no subject)

Date: 2006-10-08 08:25 am (UTC)
coneyislandbaby: (Default)
From: [personal profile] coneyislandbaby
I'm so sorry. This is such a difficult time and sometimes there are no words. I've been there.

Just *hugs*

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